In a continued effort to create awareness about migraine and headache disease, we have developed a Miles for Migraine Education Day. This event will be about creating community and sharing knowledge for people with migraine and other headache disorder, and for their families and loved ones.
The day will be both informational and experiential. Our goal is for the person with headache disease to both learn and be supported. Topics will cover coping strategies, advocacy, stigma, research, and medical advancements. There will be time to join with others in a supportive and safe community.
We have invited local doctors and other providers to give lectures and provide an opportunity for open dialogue and experiential participation so that the day is not confined to only lectured information.
**NEW** For those interested in attending from outside the Philadelphia area, we encourage you to join us for a live stream of the event on our Facebook page the day of the event. Though the streaming will not allow you to participate in all aspects of the day, you will have a chance to hear from most of our guest speakers. Hop in for as little or as much time as you want!
Though there is no charge, we ask that you consider a donation to support continued programming like this. Please register for this via the link above.
For more information about Migraine Education Day, contact Shirley Kessel at at firstname.lastname@example.org.
Migraine is poorly understood, despite the fact that it is one of the most common and disabling disorders in the world. Patients go without adequate treatment; researchers receive inadequate federal research funding; and people with headache disorder report extraordinary levels of stigma. These problems can be attributed to persistent stereotypes about the kind of person who gets migraine, according to Joanna Kempner, associate professor of sociology at Rutgers University and author of the book Not Tonight: Migraine and the Politics of Gender and Health. On Migraine Education Day, Kempner, who herself has had migraine since the age of 5, will talk to us about where these stereotypes come from and what we can do to dismantle them.
Joanna Kempner, PhD – Dr. Kempner is an associate professor of sociology at Rutgers University, where she writes teaches, and lectures about the science, medicine, politics, gender, and the body. Her award-winning book, Not Tonight: Migraine and the Politics of Gender and Health (Chicago 2014), uses concepts from sociology, anthropology, literature, history, and science studies to explain why so few people take migraine seriously despite the fact that it is one of the most common, painful, and disabling disorders in the world. Kempner is also known for her work on the politics of controversial science. Her research can be read in a wide-range of academic and popular venues, including Science, PLoS Medicine, Social Science & Medicine, and Migraine.com.
This talk will address the stigma of migraine from the perspective of the provider and patient. The importance of advocacy for migraine and opportunities for involvement will also be discussed.
William B. Young, MD, FAHS, FAAN: Dr. Young is a board-certified neurologist. He is Professor of Neurology, Director of the In-Patient Program at the Jefferson Headache Center and member of the Pharmacy and Therapeutics Committee at Thomas Jefferson University.
Dr. Young is a graduate of Haverford College in Haverford, Pennsylvania. He received his medical degree from Pennsylvania State University College of Medicine. He interned at St. Elizabeth’s Hospital in Boston, Massachusetts, and completed a residency in neurology at Tufts University School of Medicine and The New England School of Medicine in Boston.
Dr. Young is a fellow of the American Headache Society, American Academy of Neurology, American Neurological Association, and the College of Physicians of Philadelphia. He is President of the Alliance for Headache Disorders Advocacy. He is a graduate of the Palatucci Advocacy program of the American Academy of Neurology. He is also a peer reviewer for Cephalalgia, Headache, and Neurology.
Dr. Young’s publications include many peer-reviewed articles, book chapters, and miscellaneous publications. His special interests include posttraumatic headache, treatment of intractable migraine, migraine stigma, and migraine phenomenology.
This session will provide an introduction to theory, practice and application of mindfulness, a meditative process that can quiet the mind, calm the body and enhance well-being. Mindfulness is a deeply nourishing practice that cultivates one’s ability to cope more effectively with the ordinary and extraordinary challenges of daily life. Research will be presented on the benefits of mindfulness for those with chronic pain including for people with migraine. Dr. Reibel will guide through short mindfulness practices that can be used to support day- to-day living with less stress, more vitality and greater compassion.
Diane Reibel, PhD: Dr. Reibel is the Director of the Mindfulness Institute at the Myrna Brind Center of Integrative Medicine at Jefferson and Clinical Associate Professor in the Department of Emergency Medicine at Sidney Kimmel Medical College, Thomas Jefferson University. She has been teaching mindfulness –based stress reduction (MBSR) for over 20 years to patients, healthcare professionals and medical students. She participated in professional training under the direction of Jon Kabat-Zinn, PhD, and has completed the most advanced teacher training at the Center for Mindfulness at University of Massachusetts Medical Center where she has been awarded MBSR teacher certification.
In addition to her passion for teaching mindfulness she studies the physiologic effects and health outcomes of mindfulness training and her research is published and widely cited in both scientific journals and the popular press. Dr. Reibel is coauthor of the book Teaching Mindfulness: A Practical Guide for Clinicians and Educators (2010) and co-editor of the book Resources for Teaching Mindfulness: An International Handbook (2016).
This talk will feature new and existing medicines that can be used as an acute and preventive treatment for migraine. In addition, this talk will also address various forms of stimulation devices in the treatment of migraine and cluster headache.
Elliott Schulman: Dr. Schulman is certified by the American Board of Psychiatry & Neurology, and received UCNS Headache Medicine Certification. He is a fellow of the American Academy of Neurology, American College of Physicians, and the American Headache Society. He is Adjunct Clinical Professor of Neurology, Jefferson School of Medicine, Philadelphia, Pennsylvania. He is also participated and served as a mentor in the Palatucci Advocacy Leadership Forum.
Dr. Schulman has authored numerous articles in Headache, Neurology, Archives of General Psychology, Archives of Neurology, Clinical Pharmacology and Therapeutics, and Epilepsia. His current interests are refractory migraine headache and the role of abuse in headache and other pain states. Dr Schulman is nationally and internationally known for his seminal work on Refractory Migraine, and is a lead editor of the text, Refractory Migraine. He also co authored the AAN Position Statement on Violence and Abuse.
Why would your headache doctor tell you it is time to see a psychiatrist when we all know your headache is real? Explore the complicated interaction between pain and anxiety, trauma, and depression. Learn how effective mental health treatment includes more than medicine and might help you live the life you want to live.
Lisa Goldstein, MD: Dr. Goldstein is Board Certified in both Child and Adolescent and Adult Psychiatry. She has had a private practice in Rosemont Pennsylvania for more than 15 years and also provides consultations for school districts throughout Pennsylvania and Delaware. She has always had a special interest in children and adolescents with complicated special education needs and this has expanded to include students with Chronic Migraine and Post Traumatic Headache. Dr. Goldstein graduated from Bryn Mawr College and Temple University School of Medicine, trained at the University of Connecticut, and completed her Child and Adolescent Psychiatry Fellowship at UCLA. Dr. Goldstein is the President of the Pennsylvania Branch of the International Dyslexia Association. She actively supports patient advocacy through her work with Miles For Migraine and the National Headache Foundation.
Have you ever hoarded medication for those days when you really need it? Is keeping a migraine diary too cumbersome to provide real insight into your disease? Have you lost meaningful relationships because of migraine?
This discussion, led by a fellow chronic migraine patient, will dissect the results of Migraine.com‘s seminal “Migraine in America” survey. You’ll find that you are not alone in the challenges you face. There’s a whole community that understands your struggles and can offer support. You don’t have to feel alone.
Katie Golden, Professional Patient, Writer, Patient Advocate: Six years ago, Katie experienced a migraine that has never gone away. Forced to leave her career, she turned to writing to find purpose. Katie is a staff writer for Migraine.com and recently launched her own blog, Golden Graine. She is a member of the American Headache and Migraine Alliance (AHMA), National Headache Foundation, and a proud ambassador for the U.S. Pain Foundation. Katie advocates for fellow patients through her participation in Headache on the Hill and raises awareness and funds through Miles for Migraine. Katie works hard to live a fulfilled life with chronic migraine and pain and aims to inspire others to do the same.
Break-out groups will provide an opportunity to connect with others and to be part of a supportive community. These groups will be facilitated and supported by healthcare professionals experienced in creating conditions for safe and confidential dialogue within groups.
Chris Molnar, PhD: Dr. Molnar obtained her Ph.D. degree in Clinical Psychology and Psychophysiology from The Pennsylvania State University. Her post-doctoral fellowship training was in traumatic stress, brain imaging and stimulation at the Medical University of South Carolina. After this she trained at the International Center for Mindfulness (CFM) to teach Mindfulness-based stress reduction (MBSR). She has adapted the CFM’s MBSR program to teach highly distressed and stressed people mindfulness, emotion management, and relationship enhancement. She is President of the Mindful Exposure Therapy for Anxiety and Psychological Wellness Center, Inc. (META Center: www.meta4stress.com).
At META Center, she integrates Cognitive-Behavior Therapy (CBT) with other forms of psychotherapy. Her work is guided by ongoing developments in functional and cognitive neuroscience, emotion and motivation, and other areas of inquiry into how humans learn optimally to maintain and apply healthy habits during states of threat and challenge. Before founding META Center in 2007, Dr. Molnar worked as a clinical investigator supported by grants from the National Institute of Health (NIH) and other funding agencies. For a full list of her scientific contributions, popular press articles, and select professional presentations visit www.meta4stress.com. Here you will find Dr. Molnar’s full credentials under the Resources tab.
Caryn Richfield, PsyD: Dr. Richfield is a licensed clinical psychologist practicing in the Plymouth Meeting area for the past 30 years. She graduated from the George Washington University and received her doctorate in psychology from Hahnemann Medical College. She has devoted most of her time to the treatment of adolescents and adults of all ages. Dr. Richfield has special interest in the areas of chronic illness and headache disorders, mood and anxiety disorders as well as eating disorders. Her approach incorporates a blending of psychodynamic theory, cognitive-behavioral strategies and psychoeducation. She also has a certification in Mindfulness-Based Stress Management for Teens. Dr. Richfield writes a monthly column for parents called Coping, which appears in several area newspapers in Montgomery County.
BioNeurofeedback is one of the recommended treatments for migraine. No longer considered an “alternative” by the National Institute of Mental Health, it has joined the ranks as one of the most effective treatments for migraine. Dr. De Bease will explain which migraine client will benefit the most from this type of treatment and why certain clients should include this training in their overall treatment strategy. The emphasis of her presentation will be demonstration and participation.
Celeste De Bease, Ph.D., BCB, BCN: Dr De Bease is a medical psychologist who is board certified in both biofeedback and neurofeedback. She is the founding director of Widener University’s graduate training program in biofeedback and has a private practice in Bala Cynwyd, PA. She treats both medical and psychological disorders as well as providing peak performance training for athletic, business professionals, and performing artists.
She has served on the international certification board for 7 years and is an accredited biofeedback/neurofeedback trainer. She has been a guest speaker at numerous conferences and workshops including AAPB (Association for Applied Psychophysiology & Biofeedback), DPA (Delaware Psychological Association), Canyon Ranch, the Northeast Biofeedback Society and many more.
Dr. De Bease received her undergraduate degree from the University of Pennsylvania and her doctoral degree from Temple University. During her academic training, she worked for the Temple Department of Psychiatry under Dr. Charles Shagass in Temple’s EEG lab. Her dissertation used one of the first brain mapping programs in the United States and studied the impact of various types of imagery on the EEG patterns in the brain.
Key to self-care even in the thick of chronic pain is learning safe ways to engage in movement that nourishes the body and the mind. This brief experiential session will begin with an exploration of the breath as entry and guide into gentle movement. You will experience several stress-relieving breaths and postures that you can take with you to practice at home or at work.
Esther Wyss-Flamm, PhD, EdM, E-RYT, owner of White Flame Yoga, brings a unique blend of expertise, life experience, and joy to her classes and programs. Her instruction is rooted in the belief that the profound benefits of yoga and mindfulness are accessible to everyone. Esther is known and loved for designing experiential learning and state-of-the-art programs that enable people to thrive. Whether one-on-one or in groups, she helps her students clarify concerns, reduce anxiety, find increased energy and ease, and figure out next steps to reconnect with their life purpose.
In addition to her professional work and academic training in adult learning and group dynamics, she is a certified yoga instructor in the Kripalu tradition with additional training in breath awareness (pranayama) and yoga for chronic health conditions. Embedded in all of Esther’s programs are opportunities for deep stress relief, for unfolding self-awareness, and for supporting behavior change designed for participants in the thick of life’s challenges.